Sophie

It is with deep sadness that I am sharing the news that little Sophie Henkel passed away at 12:18 this morning. Our sincerest condolences go out to her
family and friends. Rest in peace little angel.







Please keep Sophie in your prayers.
She has Williams Syndrome just like Michaela and so many others. She had open heart surgery on October 14. They replaced her aortic valve and removed the bad portion of her aorta above the valve that they are replacing. She was placed on a bypass machine as the Dr's worked to fix her heart. She needs a miracle.


Update #1:
"Dr. told us yesterday he would try to keep Sophie's own valves and fix them better to do that than risk her heart rejecting a donor valve. But that if he could not do that he would patch her aorta and harvest her good valve and put in a donor valve. The longest it was supposed to take was 5 hours. She's still on bypass with no other news. She's on bypass and we are past our time limit.

Update #2:
"We have just spoke with Sophie's surgeon. They have left her breastbone open because her heart may still need a ventricle assist machine so he needs to be able to access her heart to hook up the machine up directly. The Dr is more concerned because of the heart not being able to regain a good beat. Dr's are worried about swelling and bleeding also. Thank you for praying.

Update #3:
"We have laid our eyes on our Sophie. She is still on a breathing machine. She has more wires than the griswolds house at christmas. Very critical night in her recovery. Thank you all for praying and your words of encouragement. They are keeping us standing upright."

Update #4:
"Sophie has a lot of hurdles to jump. She's not breathing on her own and her heart is not beating on it's own. She's loosing blood, some is normal but she's loosing more than they would like. She's critical but stable."

Update #5:
"Sophie's blood pressure dropped rapidly at approx. 4 am. Her heart was not able to function without putting her back on ecmo machine. This machine is functioning for her heart and lungs. Trying to allow her heart to rest. They performed CPR. She did loose oxygen to the brain. They don't know what affect that will have for now."

Update #6:
"Because Sophie's heart is not moving right now, blood has coagulated in her left ventricle and formed a clot. She's now scheduled for surgery to remove the clot. Thank You all for your prayers and words of encouragement. We are blessed by the outpouring of support."

Update #7:
"Sophie's scheduled to have her second heart surgery tomorrow am to remove the clot. Dr will have to cut her heart open to get the clot out. Another BIG hurdle she will be fragile again. They are shooting for 10 am, give or take. It's very important to remove the clot."

Update #8:
"Just spoke with Dr. Sophie's heart is not functioning or showing any signs of improvement and it should be. Her kidneys and liver have suffered from the surgery. Dr. will not remove her clot; she will not survive it. If her heart does not show signs of function we need to decide if we want to start the transplant process. However they can not do it if her liver is damaged. She needs a miracle."

Update #9:
"4 am Sophie's kidneys are not functioning. Dr is going to take away her sedation med later this am to see if sophie's body will move. She has not had any movement to any external stimulus. She should have some. Nancy's birthday is sunday. Maybe they will have cake together."

Update #10:
6:30 am. "Just turned off all pain meds and sedation so she can wake up."

Update #11:
As of 2 hours ago, October 17th
"Sophie has a pacemaker hooked up. They shut that off for a moment and they found no electrical activity in her heart. She has not moved or become awake thus far"